Rare Sunflower Syndrome has Significant Effects on Patient Lives

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Sunflower syndrome is a rare photosensitive epilepsy which has received little attention in recent medical literature. The historical cases documenting the epilepsy's stereotyped handwaving motion in front of light characterized the behavior as self-inducing seizures via mimic of stroboscopic effect.

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Sunflower syndrome or EEM with prominent photic induction Who gets EEM? Epilepsy with eyelid myoclonia (EEM) most often starts in children aged between 6 and 8 years. But it can start any time between the ages of 2 and 14 years. It's more common in girls than boys. It's not linked to any other health problems or problems at birth.

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Sunflower syndrome (SFS), also known as eyelid myoclonia with absences, is a rare type of childhood epileptic disorder that results in highly patterned seizures. SFS, a type of photosensitive epilepsy, is usually caused by flashing lights or light that creates contrasting patterns of light and dark.

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What is Sunflower Syndrome? Sunflower syndrome is a rare, photosensitive epilepsy syndrome characterized by stereotyped reflex seizures and attraction to light. These seizures present with lateral head rotation and the waving of one's hand in front of their eyes. The syndrome gets its name from the sun-seeking behavior demonstrated by sunflowers.

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Sunflower syndrome compels those who suffer from it to turn toward bright light and wave one hand, fingers spread, in front of their eyes. It's usually the same hand every time. This unique behavior is coupled with abrupt lapses in consciousness that last several seconds. "About half of the kids do it both indoors and outdoors.

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Sunflower syndrome (SFS) is a rare childhood-onset generalized epilepsy characterized by photosensitivity, heliotropism, and drug-resistant stereotyped seizures maybe self-induced by hand-waving maneuvers. Data on the long-term prognosis are scantly and evidence over best treatment strategies is lacking. Methods

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Sunflower syndrome (SFS) is a rare childhood-onset generalized epilepsy characterized by photosensitivity, heliotropism, and drug-resistant stereotyped seizures. Hand-waving episodes are typically associated with generalized 3-4 Hz spike- and-wave discharges; however, ictal EEG findings may vary..

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Sunflower syndrome, a type of reflex seizure usually accompanied by eyelid myoclonia, can be managed with valproate or polypharmacy suggests a recent study of affected patients managed by the Department of Neurology, Division of Child Neurology, Stanford University School of Medicine. Sunflower syndrome, a photosensitive epilepsy, is triggered.

Rare Sunflower Syndrome has Significant Effects on Patient Lives

Understanding Sunflower syndrome: Results of an online questionnaire Highlights • A 138-question survey was created to better characterize Sunflower syndrome. • Anticonvulsant therapies are often ineffective in reducing the handwaving episodes. • Many respondents reported anxiety or depression related to Sunflower syndrome. •

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Sunflower syndrome is a rare photosensitive epilepsy which has received little attention in recent medical literature. The historical cases documenting the epilepsy's stereotyped handwaving motion in front of light characterized the behavior as self-inducing seizures via mimic of stroboscopic effect.

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Sunflower syndrome (SFS) is a rare childhood-onset generalized epilepsy characterized by photosensitivity, heliotropism, and drug-resistant stereotyped seizures maybe self-induced by hand-waving maneuvers. Data on the long-term prognosis are scantly and evidence over best treatment strategies is lacking.

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> Sunflower syndrome (SFS) is a rare childhood-onset generalized epilepsy characterized by photosensitivity, heliotropism (tendency to move towards light) and drug-resistant stereotyped seizures. > The attraction to light often precedes the onset of handwaving episodes by days to months.

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Sunflower syndrome is a rare childhood-onset generalized epilepsy characterized by highly stereotyped drug-resistant photosensitive epilepsy which may have underlying genetic etiology ( 1 , 2 ).

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The survey was distributed to individuals with Sunflower syndrome who 1) had been evaluated in clinic by ET, a board cer-tified epileptologist, 2) contacted our institution, or 3) responded to an online advertisement (Appendix 2). Surveys were completed by parents or legal guardians for individuals under 18 years of age.

Family confronts sunflower syndrome Local

Sunflower Syndrome describes reflex seizures - typically eyelid myoclonia with or without absence seizures - triggered when patients wave their hands in front of the sun.

Sunflower Syndrome

Rare Disease. Usually when people think of a seizure disorder, they think of something called tonic-clonic seizures or episodes where a person loses consciousness, has muscle stiffness, spasms, and jerky movements. In reality, there are many different types of seizures and seizure disorders including a very rare form called sunflower syndrome.